October 2, 2012
After all the craziness with the steroid side effects...
I was admitted to Zale Lipshy Hospital in Dallas around 3 pm. We waited all day Thursday and Friday waiting for a room to open up. We finally thought we were going to have to wait until Monday, or be admitted through the ER at St Paul and then transfer to Zale Lipshy once there was an opening. But, after phone call after phone call by my amazing husband, we FINALLY got a call saying a room just opened.
After getting settled in the room, meeting the Neurologist on call, and a plethura of Neuro tests and evaluations, it was time to start my I.V.
As usual, my veins were not cooperating. They stuck me 4 times and then decided to wait and let the night shift/manager handle it. They were able to atleast get blood for the lab for the tests they needed to run. Around 7 ish the night shift came in, and she tried once to get an iv started. No luck, so the manager came in later on and with one easy stick was able to get a really good line going. Thank you Jesus!!!
The whole night, I had doctors after doctors coming in and doing evaluations, and checking my vitals, giving me IV meds, and what not It was insane. We met the whole Neuro team and the student team. Very interesting to be at a teaching hospital, yet rewarding. The Doctors have to be at the top of their game and you know you are getting a very thorough Evaluation/ treatment. Shane stayed at the hospital with me until really late. He wanted to stay the night, but I sent him home to make sure everything was good with my parents and the kids.
Mom took the girls to their busy Nutcracker Rehearsals and dad stayed home with the boys! He bathed them, fed them, and even had them in bed by the time mom got home with the girls at 8:30-9:00. Pretty nice, huh? I got great parents. :)
Nurses and all the staff here are AMAZING!!!! Friendly, helpful, sweet, and on top of their game. Plain and simple... AWESOME!!
Thursday, November 8, 2012
Thursday, October 25, 2012
Liam October 2012
My baby is 21 mths old. I can not believe how fast the little guy is growing up. He has such a funny personality. He is always happy and smiling. He is finally really starting to talk. He was doing really well, and then took a 5 mth hiatas :)
Some of his new words in the past few weeks:
Bible
Bubbles
Uh oh!
Oh No!
No!
Dada (already could say it, but now says it all the time and to Shane)
Ice
Slide
Yellow
Baby
Doggy
cookie
cracker
sucker
Meme (blanket)
Papa
Mimi
Dirty
pee pee
poo poo
There is so many more, but I can not think off the top of my head.
You are obsessed with baseball. You actually can hit the ball when thrown to you. You have several bats, balls, batting helmet. Your favorite is a short, red bat that Carolyn gave you, and a small basketball. When we throw it to you, you swing your bat and hit maybe 15 % of the time. It is really cool. I still havent caught it on video, but we are so proud of you. You are proud too, and get really excited. I think you would play baseball all day if we let you. You are always carrying your bat and ball. You have a ball pit that you love to play in as well. It is a messy toy, but you love it, so it is worth it.
You also love to watch Yo Gabba Gabba!! It is your favorite tv show. You sit quietly and watch it and jump up at times and dance. It is cute!!
You LOVE hats!!! You want to wear them ALL the time. One day, you put one on before we went to school, and you would not take it off. You wore it to class and kept it on all day! They said you even slept in it. HA!!
You are having better days at school. You are finally adjusting to being away from Mommy. It is a nice little break, but I admit, I sure do miss your smile, and laughter. You have two sweet teachers.. Ms.Shannon and Ms. Leslie. They are both really good with trying to divert your attention. You sleep like a big boy on your nap mat. It is so cute to walk into the room and see you and your little friends snuggled up on your mats. Precious!!
Next week is Costume parade at school. I am looking forward to dressing you and Hayden up and seeing you guys march around!
You can climb to the top of the big slide structures Papa built. It always makes me nervous, but you do such a good job. You sometimes even get to the top of the wavy slide and hang from it like a monkey. You are so strong. It is crazy.
You love your puppy, Sandy. She likes to give you kisses, and you just laugh and giggle. You are getting much better at petting her instead of swatting her.
We go on alot of bike rides and you always enjoy sitting back behind mommy. You are not crazy about the bike stroller, but I think you will get use to it the more we use it. It was a bit bouncy the other day when daddy took you on an adventure with the big kids.
You wake up every morning, ready to see EVERYONES faces. You look eagerly around wanting to see everyone. You also are ready to eat breakfast (yum yum) first thing. Little Piggy!
You let us know when you have a dirty diaper. You either say, dirty, pee pee, or poo poo. When you toot, you think you went potty, and say "dirty". It is cute!! I probably need to start potty training with you, but I think we will wait until after the holidays. Too much going on.
Your birth mommy is doing well. She finished school and is looking for a job so she can make a home for you guys. She loves you, and has really shown more devotion lately.
Anyways, my little love. I am so thankful to have you in my life. You are so special, and have been such a blessing over the past 21 mths. Looking forward to more special memories with you.
Love, Mommy Misty
Some of his new words in the past few weeks:
Bible
Bubbles
Uh oh!
Oh No!
No!
Dada (already could say it, but now says it all the time and to Shane)
Ice
Slide
Yellow
Baby
Doggy
cookie
cracker
sucker
Meme (blanket)
Papa
Mimi
Dirty
pee pee
poo poo
There is so many more, but I can not think off the top of my head.
You are obsessed with baseball. You actually can hit the ball when thrown to you. You have several bats, balls, batting helmet. Your favorite is a short, red bat that Carolyn gave you, and a small basketball. When we throw it to you, you swing your bat and hit maybe 15 % of the time. It is really cool. I still havent caught it on video, but we are so proud of you. You are proud too, and get really excited. I think you would play baseball all day if we let you. You are always carrying your bat and ball. You have a ball pit that you love to play in as well. It is a messy toy, but you love it, so it is worth it.
You also love to watch Yo Gabba Gabba!! It is your favorite tv show. You sit quietly and watch it and jump up at times and dance. It is cute!!
You LOVE hats!!! You want to wear them ALL the time. One day, you put one on before we went to school, and you would not take it off. You wore it to class and kept it on all day! They said you even slept in it. HA!!
You are having better days at school. You are finally adjusting to being away from Mommy. It is a nice little break, but I admit, I sure do miss your smile, and laughter. You have two sweet teachers.. Ms.Shannon and Ms. Leslie. They are both really good with trying to divert your attention. You sleep like a big boy on your nap mat. It is so cute to walk into the room and see you and your little friends snuggled up on your mats. Precious!!
Next week is Costume parade at school. I am looking forward to dressing you and Hayden up and seeing you guys march around!
You can climb to the top of the big slide structures Papa built. It always makes me nervous, but you do such a good job. You sometimes even get to the top of the wavy slide and hang from it like a monkey. You are so strong. It is crazy.
You love your puppy, Sandy. She likes to give you kisses, and you just laugh and giggle. You are getting much better at petting her instead of swatting her.
We go on alot of bike rides and you always enjoy sitting back behind mommy. You are not crazy about the bike stroller, but I think you will get use to it the more we use it. It was a bit bouncy the other day when daddy took you on an adventure with the big kids.
You wake up every morning, ready to see EVERYONES faces. You look eagerly around wanting to see everyone. You also are ready to eat breakfast (yum yum) first thing. Little Piggy!
You let us know when you have a dirty diaper. You either say, dirty, pee pee, or poo poo. When you toot, you think you went potty, and say "dirty". It is cute!! I probably need to start potty training with you, but I think we will wait until after the holidays. Too much going on.
Your birth mommy is doing well. She finished school and is looking for a job so she can make a home for you guys. She loves you, and has really shown more devotion lately.
Anyways, my little love. I am so thankful to have you in my life. You are so special, and have been such a blessing over the past 21 mths. Looking forward to more special memories with you.
Love, Mommy Misty
October 2012
October has been a very interesting month for us. The kids and I spent two weeks sick while Shane was out of town. Mom came up to help me out so I could get some rest. In two weeks, we went to the doctor 8 times with diagnoses as strained knee/thigh from ballet, Pneumonia, anemia, severe bronchitis, croup, and sprained/strained elbow (Shane took kids skating- hayden fell back on his arm). The first two trips resulted in being sent home saying they were both okay. Two days later, we made a trip to Care Now with Pneumonia. I was a bit irritated with our pediatrician to say the least. Hannah was having head pain/tingling for a few days, then woke up one morning and stood up from breakfast and almost fell. I said, "Are you ok Hannah?" She was zoned out and I finally got her to respond to me. She said her thigh hurt and was tingling. If I took the pressure off her leg she felt better, but as soon as I made her put weight on it she would almost fall and said it hurt. This went on for 3 1/2 hours before we were able to get into the doctor.
I also went to my MS Specialists 3 times. Two Regular appts and an MRI. Found out my MRI was not very good, and had many new lesions, which are contributing to my congnitive issues and other symptoms. A new MS therapy BG12 will be approved in December and able to be prescribed in January. This is the new route my Specialists wants to take. I was also diagnosed with a Virus that lives in your system that anyone can get. It is not an issue for "healthy" people, but for someone with MS is can be serious. I can not go on an immunosuppressant therapy long term due the fact that the virus can make me really sick. So, my therapy options are limited. I was put on a high potency oral steroid to keep my body from having new relapses/lesions until I can get on my new therapy in January. It started out well, but didnt have a taper, so my body went into shock. Been really sick this week with some terrible symptoms. I have now started my 14 day taper and hoping to start feeling better soon so I can enjoy my life and my family. I hate feeling sick and zoned. Lets just say 3 1/2 weeks of October have been almost wasted. I had so many fun things I "wanted" to do with the kids. I guess some of it will just have to be done in November, right? I am also on 10,000 Ui of D3. My Vitamin D levels were normal for a "healthy" person, but or someone with MS they were considered low. So, I am taking a good deal of Vitamin D. I am a walking pharmacy :)
On a different note... Hailey tried out for the Spelling Bee again this year, and made the team. They will be competing sometime in January. She is excited. She didn't think she did very well.
The Fourth graders went to Camp Carter on Tuesday 10-23, and had a great time. They didn't get back until about 6:40 pm. Hailey was really excited and had some fun stories to share. Looking forward to seeing the pictures one of her friends mom took of them. They played games, archery, nature hikes, and all kinds of outdoor fun!
Our weekends have been crazy busy with Nutcracker Rehearsals from 9-1:30 on Saturdays and Baseball games in between. We haven't been doing too much other than that. Just trying to spend some family time in between riding bikes and stuff.
Last weekend, we went to Avery Minters 7th Birthday Party. The kids had a great time with their buddies. It was a movie party, so they danced, ate popcorn, watched a movie, had pizza, cupcakes and just played. It was fun!! Sunday, I was sick from my steroid meds, but Shane took the kids to church, Averys Baptism, Baptism Lunch at Burger King and then Hannahs friend (Hannah Johnson) ice skating party. I will say they had a VERY busy Sunday!! I am thankful for such an amazing Husband.
Monday morning 10-22, I went the the dentist to get two temporary crowns and Shane took Hayden to Care Now. He was complaining of his chest hurting. He doesn't have pneumonia, but it is a little cloudy. He did have strep though. See, I said we cant catch a break this October!!
This weekend is going to be all about Birthday parties and hopefully getting our pumpkins carved. Love this time of year!!!
Okay, I think I updated our month so far. I am sure I missed some stuff, but I have brain fog. I can barely walk from one side of the room to the other and remember what I was doing. Ha!!!
I also went to my MS Specialists 3 times. Two Regular appts and an MRI. Found out my MRI was not very good, and had many new lesions, which are contributing to my congnitive issues and other symptoms. A new MS therapy BG12 will be approved in December and able to be prescribed in January. This is the new route my Specialists wants to take. I was also diagnosed with a Virus that lives in your system that anyone can get. It is not an issue for "healthy" people, but for someone with MS is can be serious. I can not go on an immunosuppressant therapy long term due the fact that the virus can make me really sick. So, my therapy options are limited. I was put on a high potency oral steroid to keep my body from having new relapses/lesions until I can get on my new therapy in January. It started out well, but didnt have a taper, so my body went into shock. Been really sick this week with some terrible symptoms. I have now started my 14 day taper and hoping to start feeling better soon so I can enjoy my life and my family. I hate feeling sick and zoned. Lets just say 3 1/2 weeks of October have been almost wasted. I had so many fun things I "wanted" to do with the kids. I guess some of it will just have to be done in November, right? I am also on 10,000 Ui of D3. My Vitamin D levels were normal for a "healthy" person, but or someone with MS they were considered low. So, I am taking a good deal of Vitamin D. I am a walking pharmacy :)
On a different note... Hailey tried out for the Spelling Bee again this year, and made the team. They will be competing sometime in January. She is excited. She didn't think she did very well.
The Fourth graders went to Camp Carter on Tuesday 10-23, and had a great time. They didn't get back until about 6:40 pm. Hailey was really excited and had some fun stories to share. Looking forward to seeing the pictures one of her friends mom took of them. They played games, archery, nature hikes, and all kinds of outdoor fun!
Our weekends have been crazy busy with Nutcracker Rehearsals from 9-1:30 on Saturdays and Baseball games in between. We haven't been doing too much other than that. Just trying to spend some family time in between riding bikes and stuff.
Last weekend, we went to Avery Minters 7th Birthday Party. The kids had a great time with their buddies. It was a movie party, so they danced, ate popcorn, watched a movie, had pizza, cupcakes and just played. It was fun!! Sunday, I was sick from my steroid meds, but Shane took the kids to church, Averys Baptism, Baptism Lunch at Burger King and then Hannahs friend (Hannah Johnson) ice skating party. I will say they had a VERY busy Sunday!! I am thankful for such an amazing Husband.
Monday morning 10-22, I went the the dentist to get two temporary crowns and Shane took Hayden to Care Now. He was complaining of his chest hurting. He doesn't have pneumonia, but it is a little cloudy. He did have strep though. See, I said we cant catch a break this October!!
This weekend is going to be all about Birthday parties and hopefully getting our pumpkins carved. Love this time of year!!!
Okay, I think I updated our month so far. I am sure I missed some stuff, but I have brain fog. I can barely walk from one side of the room to the other and remember what I was doing. Ha!!!
Thursday, August 2, 2012
7-31-2012
On our way to NRH2O, we made a quick stop at Sonic for some ice cold drinks. All of a sudden Hayden screams, "Mommy, Liam is out of his seat!!". I quickly turn around and sure enough the crazy boy was standing in front of his seat trying to work his way toward the other kids. I do not know how he did it, but he unbuckled the top buckle and one of the bottom ones and squeezed his way completely out, leaving the other buckle still buckled. Oh My!!! I think we might be heading toward some fun times :)
On our way to NRH2O, we made a quick stop at Sonic for some ice cold drinks. All of a sudden Hayden screams, "Mommy, Liam is out of his seat!!". I quickly turn around and sure enough the crazy boy was standing in front of his seat trying to work his way toward the other kids. I do not know how he did it, but he unbuckled the top buckle and one of the bottom ones and squeezed his way completely out, leaving the other buckle still buckled. Oh My!!! I think we might be heading toward some fun times :)
Wednesday, August 1, 2012
Why Jesus is skinny
7-31-2012
In the car...
Hayden: "Mom, I know why Jesus is skinny and not fat"
Mom: "You Do?"
Hayden: "Yes! Because he never eats. When you go to Heaven you are never hungry, thirsty, or have any pain."
Love, Love, Love....
In the car...
Hayden: "Mom, I know why Jesus is skinny and not fat"
Mom: "You Do?"
Hayden: "Yes! Because he never eats. When you go to Heaven you are never hungry, thirsty, or have any pain."
Love, Love, Love....
Tuesday, April 17, 2012
4-16-12
I took Liam to the pediatrician tonight to get checked for an ear infection. We were sitting on the exam table with Hayden waiting for the doctor to come in. There was a knock on the door and then Dr. Allison came into the room.
Hayden says, "why did you knock?"
Dr. Allison replies, "I was trying to be polite."
Hayden: "Oh okay"
Hayden: "Your old"
Dr. Allison: laughs, and says "this is why I love kids. Its ok mom. Hayden, I'm old?"
Hayden "you look old"
Dr. Allison: How old do I look?"
Hayden: "I dont know." Thinks for a minute and then says "six!!! seven, eight, nine!!!"
Dr. Allison: laughs again and says " sounds good to me"
Oh my goodness. Kids say the craziest things. I was so embarrased. I could not believe he even said that.
We ended the visit with a lollipop and sticker. I sure do love our pediatrician office. They love us, despite how crazy it is when the Estes family comes through the doors. :)
Hayden says, "why did you knock?"
Dr. Allison replies, "I was trying to be polite."
Hayden: "Oh okay"
Hayden: "Your old"
Dr. Allison: laughs, and says "this is why I love kids. Its ok mom. Hayden, I'm old?"
Hayden "you look old"
Dr. Allison: How old do I look?"
Hayden: "I dont know." Thinks for a minute and then says "six!!! seven, eight, nine!!!"
Dr. Allison: laughs again and says " sounds good to me"
Oh my goodness. Kids say the craziest things. I was so embarrased. I could not believe he even said that.
We ended the visit with a lollipop and sticker. I sure do love our pediatrician office. They love us, despite how crazy it is when the Estes family comes through the doors. :)
Friday, March 23, 2012
March 22, 2012
Last night affter soccer skills, and volleyball practice we went to grab a bite to eat. We were sitting and talking about Hayden having headaches. Hannah says "Who invented headaches and when did they invent them?" Silly girl! I don't think anyone would want to "invent" a headache. It gave us a good conversation afterwards.
We have come to a conclusion, if you want our boy to focus, then everything needs to be in the form of a fun game. Last night at soccer skills, our son was more focused and obeying better than I have seen him in over a year. He loved his British coaches, and he was our little soccer star. :) He came out of hiding and showed us he can listen. He was on a roll for an hour and a half. Everytime they got a break, he would run over get a sip of water and run back to his ball and quitely wait until coach told him what to do.
Hailey and Hannah loved the british accent. Hannah said, "mom they talk a different language"
Actually baby girl, they speak the same language just a different accent then us. :)
Hayden loved hearing "kick the bull" - which was acually "kick the ball"
What a great experience. Looking forward to the net 5 weeks of skills training.
Liam can say "hey" and waves to everyone he sees. It is super cute.
He is also saying Han-nah, but not very consistent yet.
Enjoying our babies everyday. Can not believe they are 9, 7, 4 1/2 and 14 mths. Time sure does fly.
We have come to a conclusion, if you want our boy to focus, then everything needs to be in the form of a fun game. Last night at soccer skills, our son was more focused and obeying better than I have seen him in over a year. He loved his British coaches, and he was our little soccer star. :) He came out of hiding and showed us he can listen. He was on a roll for an hour and a half. Everytime they got a break, he would run over get a sip of water and run back to his ball and quitely wait until coach told him what to do.
Hailey and Hannah loved the british accent. Hannah said, "mom they talk a different language"
Actually baby girl, they speak the same language just a different accent then us. :)
Hayden loved hearing "kick the bull" - which was acually "kick the ball"
What a great experience. Looking forward to the net 5 weeks of skills training.
Liam can say "hey" and waves to everyone he sees. It is super cute.
He is also saying Han-nah, but not very consistent yet.
Enjoying our babies everyday. Can not believe they are 9, 7, 4 1/2 and 14 mths. Time sure does fly.
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