October 2012

October has been a very interesting month for us.  The kids and I spent two weeks sick while Shane was out of town. Mom came up to help me out so I could get some rest.   In two weeks, we went to the doctor 8 times with diagnoses as strained knee/thigh from ballet, Pneumonia, anemia,  severe bronchitis, croup,  and sprained/strained elbow (Shane took kids skating- hayden fell back on his arm).  The first two trips resulted in being sent home saying they were both okay.  Two days later, we made a trip to Care Now with Pneumonia. I was a bit irritated with our pediatrician to say the least.   Hannah was having head pain/tingling for a few days, then woke up one morning and stood up from breakfast and almost fell. I said, "Are you ok Hannah?" She was zoned out and I finally got her to respond to me. She said her thigh hurt and was tingling. If I took the pressure off her leg she felt better, but as soon as I made her put weight on it she would almost fall and said it hurt. This went on for 3 1/2 hours before we were able to get into the doctor.  
I also went to my MS Specialists 3 times.  Two Regular appts and an MRI.  Found out my MRI was not very good, and had many new lesions, which are contributing to my congnitive issues and other symptoms.  A new MS therapy BG12 will be approved in December and able to be prescribed in January. This is the new route my Specialists wants to take. I was also diagnosed with a Virus that lives in your system that anyone can get. It is not an issue for "healthy" people, but for someone with MS is can be serious. I can not go on an immunosuppressant therapy long term due the fact that the virus can make me really sick. So, my therapy options are limited.   I was put on a high potency oral steroid to keep my body from having new relapses/lesions until I can get on my new therapy in January.  It started out well, but didnt have a taper, so my body went into shock. Been really sick this week with some terrible symptoms. I have now started my 14 day taper and hoping to start feeling better soon so I can enjoy my life and my family. I hate feeling sick and zoned.  Lets just say 3 1/2 weeks of October have been almost wasted.  I had so many fun things I "wanted" to do with the kids. I guess some of it will just have to be done  in November, right?   I am also on 10,000 Ui of D3. My Vitamin D levels were normal for a "healthy" person, but or someone with MS they were considered low. So, I am taking a good deal of Vitamin D.  I am a walking pharmacy :)

On a different note... Hailey tried out for the Spelling Bee again this year, and made the team. They will be competing sometime in January.  She is excited. She didn't think she did very well.

The Fourth graders went to Camp Carter on Tuesday 10-23, and had a great time. They didn't get back until about 6:40 pm. Hailey was really excited and had some fun stories to share.  Looking forward to seeing the pictures one of her friends mom took of them.  They played games, archery, nature hikes, and all kinds of outdoor fun!

Our weekends have been crazy busy with Nutcracker Rehearsals from 9-1:30 on Saturdays and Baseball games in between.  We haven't been doing too much other than that. Just trying to spend some family time in between riding bikes and stuff.  

Last weekend, we went to Avery Minters 7th Birthday Party. The kids had a great time with their buddies. It was a movie party, so they danced, ate popcorn, watched a movie, had pizza, cupcakes and just played. It was fun!!  Sunday, I was sick from my steroid meds, but Shane took the kids to church, Averys Baptism,  Baptism Lunch at Burger King and then Hannahs friend (Hannah Johnson) ice skating party. I will say they had a VERY busy Sunday!!  I am thankful for such an amazing Husband.

Monday  morning 10-22, I went the the dentist to get two temporary crowns and Shane took Hayden to Care Now. He was complaining of his chest hurting. He doesn't have pneumonia, but it is a little cloudy.  He did have strep though.  See, I said we cant catch a break this October!!

This weekend is going to be all about Birthday parties and hopefully getting our pumpkins carved.  Love this time of year!!!

Okay, I think I updated our month so far. I am sure I missed some stuff, but I have brain fog. I can barely walk from one side of the room to the other and remember what I was doing. Ha!!!